Messages of Support

Messages of support

'It feels like it’s the end of the world, but it really doesn’t have to be. Hang onto that thought. It sounds totally wrong but it’s true.’

‘Being diagnosed is difficult, but give yourself time. Once things settle down it will get easier.’

There is so much help out there .......

‘Don’t bottle things up, talk to people. There is so much help out there.’

'The more you understand, the more you can manage your life around the condition. Think of life as different, not bad.'

'Your way of life will improve given time...'

Epilepsy has made me the man I am today........

'I was diagnosed with epilepsy when I was 7 yrs old. At such a young age I was very scared and confused about the whole situation...As I grew up, I was angry at the world and everyone in it, as there was nobody to talk to - just me, I was the only one... Strangely, epilepsy has made me the man I am today, and I wouldn't have had the chance to help others. So, my advice would be to use the Epilepsy Society and take control of your epilepsy - don't let it control you. It's hard work and sometimes a bit scary, but be assured that there is support.'

'My advice is go to the charities for advice and support, talk to people about it and remember you are still you... Life can go on.'

'Although epilepsy is a fundamental part of me and I cannot dismiss it, I work hard to make sure it does not hard to control my life - seize the day!!'

Don't look back, look forward it gets easier.......

'It felt like my life had crumbled around me and I had no control in what was happening or going to happen. I felt alone, afraid and vulnerable. However with a good consultant medical team and the support of the Epilepsy Society things slowly got better. Things will never be the same again, but you have to move on face the challenge ahead and grab life with both hands. Don't look back, look forward it gets easier and life can be great again.'

'Don't forget, as torrid a time as you are having right now, so are your loved ones - they want to help you but there's little they can do, so don't be harsh on them if you feel they're being overly protective... This'll get easier for all of you as you begin to understand more about exactly how your type of epilepsy works.' 

'Epilepsy is not the worst thing in the world so, anyone who has it, please try to enjoy life to the fullest, be happy and smile.'

Try not to focus on the negative aspects......

'It is not easy to be diagnosed with epilepsy, and is life changing for the carer also. But try not to focus on the negative aspects and take pleasure in what is possible, however small.'

'It's not the end of the world. It will mean a change in your life but there are still lots of things you can do.'

'Don't be too discouraged - there is life with epilepsy'

You are not alone.....

'You are not alone, there are so many sources of support. This is not a barrier to your future - you can still achieve all you set out to.'

'Be strong, be positive, be happy. Life is worth living to the full.'

'I have had epilepsy for the past 30 years. With the support of Epilepsy Society, friends and family I lead a full and active life.'

It can be a challenge....

'It can be a challenge at times. Take each day at a time, ask for help if you need it and you will be fine. It doesn't have to change your life. Life may be different now, but it doesn't have to be bad.'

'I have good days and bad days, but doesn't everyone? I took a while to digest the diagnosis but now I have accepted that epilepsy is part of my life, I'm not going to let it stop me though, just got to learn to live with it.'