Is there any1 out there

leofwine123 · **Joined:** Thu Sep 25, 2008 10:26 pm **Posts:** 413

yeah - theres networks and networks out there.. so scary i know. if you want to talk to me - personal message me anytime about anything. The best thing is to know that your not on your own and not to be afraid of anything. Stay Positive.

butterfly95 · **Joined:** Thu Jan 15, 2009 10:09 pm **Posts:** 12

[quote="rebeccaboulton123"]You never know, butterfly, you may grow out of epilepsy seeing as you are only 13. My epilepsy nurse said to me that children could grow out of it, so I am hoping that I am fortunate enough to not have epilepsy when I'm older. You know how I mentioned that I was in training for Race for Life? Well, I never actually finished all 5km. I did 1km, because I had a tonic-clonic seizure. We thought at first that I could walk it, but it ended up that I had to pull out.

It was horrible, there was such a great atmosphere and I couldn't be a part of it. Instead we are doing a Fun Run that would hopefully replace Race for Life. That is, if I don't have another seizure.]

Well done for trying the Race for life and i hope you do well in your fun run with your attitude and deturmination i'm sure you'll do well!

still keeping my chin up, Lucy!!

Julie C · **Posted:** Tue Sep 22, 2009 6:30 pm

Hope you feel better Butterfly and congrats for doing 1k. I walked it several years ago, I found the crowds scary & got separated from my friends at the end. Take care luv Juliexx

leofwine123 · **Joined:** Thu Sep 25, 2008 10:26 pm **Posts:** 413

yeah i'm here lovely. feel free to personal message me anything that may worry you. x im 20 but have had e all my life. x

butterfly95 · **Joined:** Thu Jan 15, 2009 10:09 pm **Posts:** 12

thank you all i am still having my fits and i'm being treated at GOSH but i am starting to feel a little better they are taking me off one of my medicine (Keppra) so i can go on another one and i'm very scared about the side effects and withdrawal symptoms

HELP IF YOU KNOW ANY THING ABOUT ALL THIS CONFUSING STUFF!!!
:oops:

Emily may · **Joined:** Mon Sep 14, 2009 6:38 pm **Posts:** 29

Hello butterfly,

i am not your age but i do know how you feel.I have just been diagonosed with juvenile abcence epilepsy.

take care:D

luv emily may!
xx

PS:i am on keppra and anything you need to know about it just ask!!!!!!:D

butterfly95 · **Joined:** Thu Jan 15, 2009 10:09 pm **Posts:** 12

i've completely come of of Keppra now and i feel a bit better but if you want to talk to me about anything just reply in the forum x

Paignton · **Posted:** Fri Jan 29, 2010 1:34 pm

Glad things are going well for you butterfly :mrgreen:

binder · **Joined:** Thu Jan 07, 2010 11:01 am **Posts:** 37

to butterfly i cant cope whith eplepsy ever really i am age 10

i always get stressed and have fits why :?:

Forum

Page Content Navigation

Page Banner

Primary navigation