HI I'm Julie aka Cassandra (That was the technicians idea cos I couldn't get on the forum so he altered the settings etc and here I am) Had right temporal epilepsy for most of my life was operated on and can now listen to music again(Music was my 'trigger') My advice to those of you offered an op is go for it.
It's strange what you said about music being a trigger. I've heard that before but I have TLE (they can't operate cos it's in both lobes and they can't remove both) yet when I've been in a bad post ictal state, suffering from ringing in the ears and other things, music actaully helps me. It doesn't trigger me either and when I've had a lot of cps, which is when I say it's been a bad E day, music helps then too and I often find the cps or sps get less the more music I listen to. Funny how different we all are. I have to keep the volume down though cos when I'm post ictal everything seems much louder than usual.
I'm Emilie and was diagnosed with complex partial epilepsy when I was 12 (I'm 23). I kept having 'funny turns' (ultimate de ja vu - staring, trying to remember something but not even knowing exactly what) several times a day so to be honest, it was a relief to know what was the cause of them. It's generally well controlled by medication but there have been times of stress where I can have increased seizures. My family tells me to relax - sometimes easier said than done.
Hope all is well with everyone else. Remember, if you can't drive because of your epilepsy then you can apply for a free bus pass.
Welcome, Emilie. You have the same kind of E that I have, had it since I was 7 and I'm 58 now so kind of got used to it. I've had tcs too occasionally but the cps (complex partials) are mainly what I get and are very similar to what you describe. There doesn't seem to be any triggers with mine, they come when they feel like it but meds help.
Joined: Mon Oct 24, 2011 9:59 am Posts: 45 Location: Swansea
Hi am Holly I have been on the forum but forgot to indroduce myself, I'm 48 and have TLC for the last 11 years waiting to see the mental health team to see if I have OCD , Doc thinks it could be the epilepsy,I think the fourm is great, as it's hard to talk to the family, they tend to change the subject, so it's great to be able to talk to people who understand. Love to all Hollyxxx
hi all im jessica 45 post op transexual i have just this week been told i have epilepsy and still at the stage of wondering why i have started having seizures out of the blue and having 5+ per day. it seema an area with alot of questions but not many answers given lol.nice to meet you all and look forward to getting to know you all xx
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