Epilepsy information

Welcome to the forum Jessij take care luv Juliexx

Hi ya, welcome to the forum.

Have the Drs indictaed what type of E you have yet, or are they still tyring to figure that one out? That'd explain why they haven't been able to tell you that much thus far, if it is still early days trying to work exctaly what sort of E it is - there's nearly 30 different types of E and E related syndromes.

What sort of seizures are you having?


Dave xxx

Evening all, I'm Mike ,was first diagnosed in 1971 when I was 11 (although M&D say I had convulsions as a baby but Drs said this was normal in a child!?). Had regular szs 'Grand Mal' (oldspeak for TC I believe!!) until I was about 15 when finally ot things under control. Went to catering college in Leeds & things went clear until I was 22 when I had sz at work. Lost driving licence....aagh! Had 1 or 2 attacks a year until about 1987. Then clear until last szs late 2003. Now back driving again. For the last 18 years have worked in finance & credit control in insurance industry, although the last 2.5 years spent deveoping the Accounting & Billing side of our new computer system. Live on my own & do not let E govern my life!
Currently take Epilim Chrono & Epanutim.

Hi Mike welcome to the forum, take care luv Juliexx

WELCOME to the forum Mike.

Glad to hear your driving again, sure make life easier. I took Epanutim (Dilantin in U.S.) for 45 years until it became unstable and was either low or toxic. Hope you
get it tested regularily. Hope your seizures remain controlled. Best of luck!

Jake HUGSHUGSHUGSHUGS

what happens too you all after your intro's please don't leave us we are interested in how you all get on, we're all supportive.

Hi all thought I had best say hello

I have had E all my Life and as the song says "the drugs don't work" and I have tried many many cocktails suffer with TC's and myocolinic jerks

prognosis is that I will never have full control over my sz and no operation can fix me as my whole brain is involved. but for £2 a month you can help LOL only joking, I was starting to sound like one of them adverts asking for money wasn't I.

thanks for having me

Lee

That was a good one!!!!!!!! Fits my sense of humour...pardon the pun!!!

hi folks my name is gill and i had a stroke in march, which thankfully have recovered from, but triggered off epilepsy. its not controlled as yet n they keep putting the meds up. but im here to tell the tale gill xx

Hello. xx

Welcome to the forum, take care luv Juliexx

OOooo Jake are you offering us cocktails...?

welcome to the forum

Dewi