a full life for everyone affected by epilepsy

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carers organisations

Guide to organisations offering support to carers

Find out about how we give support for carers of people with epilepsy.

Carers Direct (opens new window) - provides information, advice and support for carers, and is part of the NHS Choices website. Topics include money and legal information, taking a break, and your wellbeing.

Information and advice 0808 802 0202 (9am to 8pm Monday to Friday, 11am to 4pm at weekends)

Carers Trust (opens new window) - a UK-wide carers charity, formed in April 2012 by the merger of Crossroads Care and The Princess Royal Trust for Carers. Carers Trust aims to improve support and services for carers throughout the country. It provides information, an online community, and local support and services for adult and young carers. It also provides advice on money and benefits.

0844 800 4361 (London office), 0141 221 5066 (Glasgow office), 0292 009 0087 (Cardiff office).

Carers UK (opens new window) - membership organisation led by carers. Services they offer include providing information and advice about carers rights, and practical, financial and emotional support. They are also a campaigning organisation and conduct research.

Advice line on 0808 808 7777 (Wednesday and Thursday 10am - 12pm and 2pm - 4pm)

Carewell (opens new window) - set up as a partnership between Carers UK, Bupa and MEND, along with carers themselves, this website offers carers information about leading healthier lives.

GOV.UK (opens new window) - the UK government’s website with information on a wide range of subjects and services related to carers and caring, including care and support services, finances and benefits, care homes, employment and your rights.

Expert Patients Programme (EPP CIC) (opens new window) - this programme runs training courses for people who live with any long-term health condition. Their course 'Looking After Me' is for adults who care for someone living with a long-term health condition or disability. There are also courses to support young carers, and parents of children with life-long conditions.

0800 988 5550 (01925 320 000 if using a mobile)

Concessionary Travel Club (opens new window) - a website with information about concessionary (free or discount) travel options for carers and older people.

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