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Clare Pelham has a shoulder length brown bob. She is wearing a magenta red top and smiling at the camera

Clare Pelham highlights need for radical change in regulation of healthcare system

7 July 2020

Following the publication of the Independent Medicines and Medical Devices Safety Review, Clare Pelham, Chief Executive at the Epilepsy Society, says the appointment...

Baroness Cumberlege has short blonde hair, swept to one side. she is wearing a blue, dog-tooth jacket with a white collar and is smiling at the camera

Cumberlege Review slams way healthcare system has responded to families affected by sodium valproate

7 July 2020

After a two-year review led by Baroness Cumberlege, the Independent Medicines and Medical Devices Safety Review has today published its report into three medical...

Logo asking women under 50 to read important information about sodium valproate. Image shows graphic outline of young girl with woman who  is pregnant., on a black background

Women still unaware of risks around epilepsy medicines in pregnancy – charity survey finds

7 July 2020

One in ten (11%) women who are currently taking the epilepsy medicine valproate are unaware of the possible risk of birth defects if taken in pregnancy. Furthermore,...

Nine year old Zach crosses the finishing line after walking down a red carpet surrounded by well wishers and purple balloons. Zach is wearing a smart navy blue shirt and light coloured trousers. He is smiling.

Hero Zach completes his 2.6 challenge

6 July 2020

This was the joyful moment when nine-year-old Zach Eagling crossed the finishing line to complete his #twopointsix challenge, raising a staggering £11,000 for the...

Image shows a blue tablet shaped circle with a loud haler inside it, sounding the alarm

Vimpat 50mg x 14 tablets shortage expected

26 June 2020

We have been informed by UCB that Vimpat 50mg x 14 tablets are likely to be out of stock within the next three weeks. The shortage is expected to last for a two-three...

Boris Johnson is photographed, with his tousled mop of blonde hair. He is wearing a dark suit, white shirt and blue tie and is about to start speaking

PM Boris Johnson commits to helping our campaign to fight internet trolls

19 June 2020

Prime Minister Boris Johnson has made a firm commitment to raise our concerns about malicious tweets designed to provoke seizures in people with photosensitive...

Image shows a blue tablet shaped circle with a loud haler inside it, sounding the alarm

Phenytoin sodium 100mg capsules out of stock

11 June 2020

We have been advised by the Department of Health and Social Care (DHSC) that Accord are out of stock of phenytoin sodium NRIM 100mg capsules.


Image shows rows of shelves of medication at a pharmacy

Epilepsy medication and stockpiling issues

10 June 2020

The Epilepsy Society is seeking further information following a report on the BBC that stockpiles of some UK medicines have been used up due to the covid-19 pandemic...

The Queen is wearing a matching magenta coloured coat and hat and is standing beside Prince Philip in an open topped car as they drive along the Mall. Prince Philip is wearing a beige raincoat and holding on to the roof of the car. There is a Union Jack in the background.

The Queen sends special letter of support to Epilepsy Society

22 May 2020

Epilepsy Society receives a letter from Her Majesty The Queen, thanking staff for their continued support of people with epilepsy across the UK, during these...

Poster for 40th anniversary concert, showing Ian Curtis looking intense and singing at the mic. Set on black background.

Joy Division concert raises £21,000 for Epilepsy Society

21 May 2020

We are thrilled to announce that the streaming of “So This Is Permanent”, a concert to celebrate the life of Joy Division’s front man, Ian Curtis, raised an amazing £...


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