Clare Pelham highlights need for radical change in regulation of healthcare system
7 July 2020
Following the publication of the Independent Medicines and Medical Devices Safety Review, Clare Pelham, Chief Executive at the Epilepsy Society, says the appointment...
Cumberlege Review slams way healthcare system has responded to families affected by sodium valproate
7 July 2020
After a two-year review led by Baroness Cumberlege, the Independent Medicines and Medical Devices Safety Review has today published its report into three medical...
Women still unaware of risks around epilepsy medicines in pregnancy – charity survey finds
7 July 2020
One in ten (11%) women who are currently taking the epilepsy medicine valproate are unaware of the possible risk of birth defects if taken in pregnancy. Furthermore,...
Hero Zach completes his 2.6 challenge
6 July 2020
This was the joyful moment when nine-year-old Zach Eagling crossed the finishing line to complete his #twopointsix challenge, raising a staggering £11,000 for the...
Vimpat 50mg x 14 tablets shortage expected
26 June 2020
We have been informed by UCB that Vimpat 50mg x 14 tablets are likely to be out of stock within the next three weeks. The shortage is expected to last for a two-three...
PM Boris Johnson commits to helping our campaign to fight internet trolls
19 June 2020
Prime Minister Boris Johnson has made a firm commitment to raise our concerns about malicious tweets designed to provoke seizures in people with photosensitive...
Phenytoin sodium 100mg capsules out of stock
11 June 2020
We have been advised by the Department of Health and Social Care (DHSC) that Accord are out of stock of phenytoin sodium NRIM 100mg capsules.
Epilepsy medication and stockpiling issues
10 June 2020
The Epilepsy Society is seeking further information following a report on the BBC that stockpiles of some UK medicines have been used up due to the covid-19 pandemic...
The Queen sends special letter of support to Epilepsy Society
22 May 2020
Epilepsy Society receives a letter from Her Majesty The Queen, thanking staff for their continued support of people with epilepsy across the UK, during these...
Joy Division concert raises £21,000 for Epilepsy Society
21 May 2020
We are thrilled to announce that the streaming of “So This Is Permanent”, a concert to celebrate the life of Joy Division’s front man, Ian Curtis, raised an amazing £...