Survey for people with cavernoma
People affected by cavernoma are being asked to take part in a national survey (opens new window) about the condition to help inform future research. Epilepsy can sometimes be a symptom of cavenoma, which are clusters of abnormal blood vessels mainly found in the brain and spinal cord.
The survey, which needs to be completed before the end of February, poses questions about the management and treatment of cavernoma, its causes, diagnosis, prognosis and about care and support.
Health and social care professionals caring for people with cavernoma are also urged to take part in the survey which is part of the Cavernoma Priority Setting Partnership between neurologists, neurosurgeons, nurses, people with cavernoma and their carers.