helpline 01494 601 400
enquiries 01494 601 300

challenging stigma

Stigma champions Jasmine, Rob, Dave, Moira and Maxine talk about their experiences of living with epilepsy. Their inspiring stories tell how they overcame challenges and accepted epilepsy as a part of their lives.

How we’re challenging stigma

Research we carried out into public understanding of epilepsy has shown a disappointing lack of awareness. (Read the epilepsy awareness survey results (pdf, 210kb).) We have pledged to tackle public awareness of epilepsy head on.  Here are just a few of the ways we are working to challenge stigma about epilepsy:

  • Our stigma 'summit' in November 2013 brought together leaders in the world of epilepsy to discuss ways to tackle stigma. 
  • As part of National Epilepsy Week we produced 'the many faces of epilepsy’ showing that epilepsy can affect people of all ages and backgrounds
  • We advised Coronation Street about an ongoing storyline which is bringing epilepsy into millions of living rooms

Together with our stigma champions we have made a series of inspiring videos, in which our stigma champions share how epilepsy has affected them and how they've overcome challenges. Watch the videos below.​

Jasmine's story

Stigma champion Jasmine talks about her experience of living with epilepsy. Jasmine's inspiring story tells how she overcame challenges and accepted epilepsy as a part of her life.

Rob's story

Stigma champion Rob talks about his experience of living with epilepsy. Rob's inspiring story tells how he overcame challenges and accepted epilepsy as a part of his life.

Moira's story

Stigma champion Moira talks about her experience of living with epilepsy. Moira's inspiring story tells how she overcame challenges and accepted epilepsy as a part of her life.

Maxine's story

Stigma champion Maxine talks about her experience of living with epilepsy. Maxine's inspiring story tells how she overcame challenges and accepted epilepsy as a part of her life.

Help challenge stigma

You can challenge stigma too. Here are some ideas to help you raise awareness about epilepsy and crush myths, fear and discrimination.

  • Join us on Facebook where you can show your support for the campaign
  • Share experiences on Twitter using the hashtag #StopEpilepsyStigma
  • Encourage your friends, family and colleagues to download our free smartphone app. It contains first aid tips and information about epilepsy.
  • Know your rights – our epilepsy charter states that you have a right to be treated with dignity and respect and to not be discriminated against