Charities challenge George Osborne
Epilepsy Society is one of many charities calling on chancellor George Osborne to help carers and older and disabled people, by investing in care ahead of the 2013 Spending Review in a fortnight's time. More than 70 organisations, which form the Care and Support Alliance (CSA), are campaigning via twitter for more funding to help older and disabled people to live well and independently.
A booklet, looking at the importance of investing in care, is launched today (12 June) to highlight the necessity of proper funding, illustrating specific cases where access to good quality care and support has transformed lives.
It is hoped that the story of Epilepsy Society resident Davina, featured in the report and below, will help influence the chancellor to make the right decision before the spending review on 26 June.
Help us to influence George Osborne by tweeting the following message today, 12 June - the day the evidence is presented:
George Osborne has the power to help carers, older & disabled people but will he #InvestInCare? #SpendingReview Pls RThttp://thndr.it/11z5SmL
Davina has complex epilepsy and autism and has difficulty processing everyday sensory information such as sounds, sights and smells.
For years she lived at home with loving parents, barely able to cope with her challenging behaviour, which resulted from a lack of specialist care and support. After years of fighting for care that would meet their daughter's needs,
Davina's parents finally secured a comprehensive support package, funded by her local authority and provided by Epilepsy Society. Davina now has better seizure control and, as she is supported to communicate and cope with her sensory processing difficulties.
Jennifer Davison, Epilepsy Society's service manager, said: 'I first met Davina at the day service she attended, she was sitting on the outside of a group observing but not interacting. Staff told me they were short staffed and she didn't get any one-to-one time.
At Epilepsy Society, the specialist support team work alongside psychiatrists, neurologists and therapists to provide round-the-clock care for Davina. Her life is much more fulfilled, she attends college and regular trips out. Her family visit and take her home and the time together is quality time.
Sarah Vibert, Epilepsy Society's head of policy and development, said: 'Davina's powerful story shows how receiving the right care and support package can open doors to a positive future for many disabled people. Along with the other stories in the booklet, it demonstrates why it is essential that sufficient funding is available to provide this crucial service so that like Davina, all older and disabled people are able to live a full life.'
Find out more about Epilepsy Society's care homes for people with complex needs including epilepsy.