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count epilepsy out

In 2010 Epilepsy Society led an influential campaign to stop the government from making the generic prescription of drugs compulsory - and we won.

Supporters of Epilepsy Society's Count Epilepsy Out campaign sent postcards and letters to the minister of state for health saying that cutting costs on epilepsy drugs doesn't add up. In fact it could provoke seizures or side effects, with a high cost to both the NHS and the person with epilepsy.

Dangers of generic substitution

We also sent an in-depth response to the government consultation laying out the potential dangers of generic substitution to people with epilepsy.

With your support, this influential campaign contributed to the government's rejection of the scheme. Department of health minister Lord Howe said: 'We have listened to concerns from the public, patients and other interested parties. It is not clear whether the proposals would have provided a substantial benefit to the NHS.'

Patient safety a top priority

Professor John Duncan, former medical director of Epilepsy Society said: 'It is a great relief to see that patient safety and common sense have prevailed. Although we note that the department is talking about 'more appropriate ways of supporting the use of generic medicines and, in the long term, value-based pricing.

'We will be keeping a close eye on any future plans for cost cutting of drugs to make absolutely sure that the safety of people with epilepsy remains of paramount importance.'