No child should die due to epilepsy
When we received a heartbreaking letter from ten-year-old Ellie, detailing the death of her friend Patrick from an epileptic seizure, we knew we had to share it with you. Children sometimes say things with such simple and open honesty that they make us look again at what we already know. Each year in the UK 1,000 people die due to epilepsy; that’s two or three every day. As Ellie would tell you, even one is one too many. We all know it, so let’s stand with her this Christmas – and change it now.
Help make Ellie’s wish of a cure come true
This year we want to help bring Ellie's Christmas wish of an epilepsy cure true. We’re global leaders in research, already active in exciting new areas such as genome sequencing, which could one day provide better treatments for people still struggling with uncontrolled seizures. What this means is if a cure is going to come, it’s very likely to come from us - but we can’t deliver it on our own. All of this vitally important work – all this hope for the future - is powered by supporters like you.
Read Ellie's letter with her Christmas wish
Ellie's trip to our research centre
When we received Ellie’s letter, we wrote back to tell her a bit about all we’re doing - and her Mum, Roisin told us: ‘She felt reassured that there was a group of people out there doing something about epilepsy. Seeing the progress Epilepsy Society has already made gave her a real sense of hope for the future.’ In this video our Director of Genomics at Epilepsy Society, Professor Sanjay Sisodiya takes Ellie around our research centre.