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epilepsy and neurological organisations

UK epilepsy and neurological organisations

Epilepsy Research UK

Funds independent research into the causes, treatment, prevention and impact of epilepsy throughout the UK.

Epilepsy Action     

UK charity supporting people with epilepsy.

Epilepsy Wales

Charity helping people affected by epilepsy living in Wales.

SUDEP Action

Charity providing information about SUDEP and offering support to those affected by SUDEP.


Supporting individuals and their families affected by neurological conditions.     

Brain and Spine Foundation

Research, education and information aimed to help those affected by disorders of the brain and spine   

National Voices

The umbrella body for national voluntary organisations in the UK working to meet the needs of people with long-term health conditions

Neurological Alliance

Enables charities to work together to improve the quality of life of all those in the UK living with a neurological condition.     

Hope for Paediatric Epilepsy: London 

Supports families and children that have been affected by Epilepsy, providing a safe space for families to socialise, reduce isolation and build relationships.

International epilepsy organisations

All organisations listed open in a new link.

International League Against Epilepsy (ILAE)

A worldwide association of physicians and healthcare professionals working towards goal of where no life is limited by epilepsy.

International League Against Epilepsy UK branch

The professional organisation representing all those interested in the field of epilepsy

International Bureau for Epilepsy (IBE)

An international organisation that aims to develop, support and link national epilepsy organisations from around the world. The IBE has an extensive list of epilepsy associations from around the world, including addresses, email and telephone contacts.

Country by country

For countries not listed, go to IBE.

Australia: Epilepsy Australia

Austria: Epilepsie Dachverband Osterreich

Brazil: Associacao Brasileira de Epilepsia

Canada: Epilepsy Canada

China: China Association Against Epilepsy (CAAE)

Denmark: Dansk Epilepsiforening

France: Epilepsie France

Germany: Deutsche Epilepsievereinigung

Hong Kong: Hong Kong Epilepsy Info-Net

India: Epilepsy India

Italy: Associazione Italiana Contro l'Epilessia

Japan: Japanese Epilepsy Association

Malta: Caritas Malta Epilepsy Association

New Zealand: Epilepsy New Zealand


Slovenia: Slovenian League Against Epilepsy

South Africa: Epilepsy South Africa

Switzerland: Swiss Epilepsy Association

USA: Epilepsy Foundation