Epilepsy is often misunderstood with different facts and myths surrounding the condition despite over 500,000 people in the UK having epilepsy. We want to dispel the many myths that still exist and bring you important information about seizures, seizure triggers and epilepsy first aid.
MYTH 1: You convulse (shake and jerk) when you have epilepsy
FACT 1: Not every seizure means a person jerks convulsively, nor is a person always unconscious during a seizure. Convulsions while unconscious are usually associated with tonic clonic seizures. There are a range of seizures which have different side effects and can affect people differently. Find out more about the different seizures.
MYTH 2: Flashing lights cause seizures in everyone with epilepsy
FACT 2: Around 1 in 100 people has epilepsy, and of these people, around 3% have photosensitive epilepsy. Photosensitive epilepsy is more common in children and young people (up to 5%) and is less commonly diagnosed after the age of 20. Triggers differ from person to person, but common triggers include a lack of sleep, stress, and alcohol. Find out more about seizure triggers.
MYTH 3: You can restrain someone during a convulsive seizure and put your finger in their mouth
FACT 3: During a convulsive seizure you should never hold the person down or put anything in their mouth. It's important to know exactly what to do when someone has a tonic clonic seizure so that you can act quickly. Here's our 10 first aid steps for someone that has a convulsive seizure.
MYTH 4: Epilepsy is rare
FACT 4: Epilepsy is anything but rare, over 500,000 people in the UK have epilepsy. That’s about one in every 100 people. There are also around 60 million people with epilepsy in the world. Anyone can develop epilepsy, it happens in all ages, races and social classes. Read more facts and statistics about epilepsy.
MYTH 5: The only side effects of a seizure are tiredness and being confused
FACT 5: Having epilepsy can affect people in different ways. Knowing that a person ‘has epilepsy’ does not tell you very much about what happens for them or how epilepsy affects them. For example, some people may have problems with sleep or memory and for some people epilepsy may affect their mental health. Here's some more key issues that affect people with epilepsy.