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managing therapy or monitoring a health condition

This activity is about taking medication, or managing any treatment, at home. It is also about your ability to notice any changes in your health, and know what to do about it.

Activity scores

A - Either i) does not receive medication or therapy or need to monitor a health condition;
or ii) can manage medication or therapy or monitor a health condition unaided 0
B - Needs any one or more of the following
i) to use an aid or appliance to be able to manage medication;
ii) supervision, prompting or assistance to be able to manage medication
iii)  supervision, prompting or assistance to monitor a health condition 1
C - Needs supervision, prompting or assistance to be able to manage therapy that takes no more than 3.5 hours a week 2
D - Needs supervision, prompting or assistance to be able to manage therapy that takes more than 3.5 hours a week but no more than 7 hours 4
E - Needs supervision, prompting or assistance to be able to manage therapy that takes more than 7 hours a week but no more than 14 hours 6
F - Needs supervision, prompting or assistance to be able to manage therapy that takes more than 14 hours a week 8

Notes

  • This is about taking medication at home which has been prescribed or recommended. It does not include any treatment that has not been prescribed or recommended, and includes complementary therapies only if they have been recommended by a professional. It does not cover any medication you might be given in hospital, but does include medication given by a professional if it is given at home (for example, given by staff in a care home).
  • Managing your medication means taking it as prescribed: in the right way and at the right times. You can include why it is important for you to take your medication as prescribed, and the results of not doing this.
  • ‘Medication’ includes tablets, capsules, sprinkles, syrups, liquids and suppositories. It includes anti-epileptic medication you take, but also medication for other conditions, or which you might take due to side effects of medications (for example, anti-emetics to stop you feeling sick).
  • If you have a vagus nerve stimulator, include this in your answer and explain what it does. If you need someone else to use the magnet for your stimulator, explain this and what could happen if you didn’t have this help.
  • If you need emergency medication (to treat prolonged or repeated seizures due to the risk of status epilepticus) explain this in your answer. Explain why this is urgent, how often you need it, and the risks of not having this medication given in time. Also say whta help you need to receive emergency medication, how long you need this help for, and how often this might happen.
  • ‘Monitoring your condition’ includes noticing any changes in your condition, either aided or unaided, and knowing what to do about this. For example, you might use a seizure diary to note when you have seizures, and talk to your neurologist about changing your medication if your seizures are not controlled. It could also include remembering and attending medical appointments for your condition. If you need someone to go to medical appointments with you, for example if you have memory problems, you can explain this.
  • This activity is not about how controlled your condition is (how often you have seizures) but it does include how your condition impacts your ability to manage or monitor it. For example, if your seizures or medication means that you have problems remembering to take your medication, you can include this in your answer.
  • ‘Aids and appliances’ could refer to medication reminders, or a seizure diary to monitor your condition. ‘A’ refers to managing medication and monitoring a health condition without the use of any aid or appliance (for example, without the need for medication reminders, and with no help from anyone else). If you have examples of when you have missed medication, or taken too much, you can include this, and explain what happened.
  • ‘Supervision, prompting or assistance’ means help from someone else. This could include them reminding you to take your medication, helping you to collect your prescription, filling a drug wallet for you, or writing in a seizure diary to help you monitor your condition.
  • C – F refers to the length of time you need to receive help, measured in hours per week. This could be all in one go, or could be spread over the whole week. For example, ‘3.5 hours’ a week could be 3 ½ hours on one day, or ½ hour each day of the week.
  • 'Therapeutic activities' include physiotherapy which might be recommended following an accident or injury.

Things to think about

Include in your answer what would happen if you didn’t have help, or didn’t use aids or appliances that you need. Explain what could happen if you miss your medication or don’t effectively manage your condition. Include any real examples of when this has happened and how it affected you physically and mentally. You can also explain why taking your epilepsy medication is important to you, and how your seizures affect your life.

Does anything else about your epilepsy (including your seizures, recovery from seizures, medication side effects, or impact of your condition) affect your ability to manage your medication or monitor your condition? You can include any impact on:

  • your concentration or memory (for example, needing someone to remind you to take your medication, or using an aid to remind you);
  • your mood (for example, if feeling anxious or depressed affects your motivation to manage your medication or monitor your condition); or
  • any tiredness or confusion that you may have after a seizure and how this might affect this activity.

Remember to include:

  • whether you can do this activity reliably (safely, to an appropriate standard, repeatedly and in a timely manner);
  • whether you need aids, appliances or help from another person to do this activity;
  • how often your condition affects your ability to do this activity (the 50% rule); and
  • the impact of any other conditions or disabilities that you have on this activity.

You will get just one single score for this activity, so make sure that you include as much relevant information as possible. You can continue on a separate sheet of paper if you need to.