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managing your epilepsy

Taking an active role in your epilepsy (sometimes called ‘self-management’) can be an important part of helping to reduce your seizures and feel more in control of your condition. Learning about how your epilepsy affects you, being able to get involved and able to make informed choices about managing your treatment, is all part of this. Having a good relationship with your healthcare professionals can also help, including your GP, neurologist and epilepsy nurse if you have one, and pharmacist. They may be able to tell you about any local services and support available to you.

Know your triggers

Some people have triggers for their seizures – situations that cause or ‘set off’ a seizure – such as stress or lack of sleep. These can vary from one person to another, but not everyone will have triggers. If you can identify any triggers, you might be able to reduce the number of seizures you have by avoiding these triggers.

Some people choose to keep a diary of when their seizures happen, any triggers, any side effects and how they feel. Diaries may also have space to keep details of medication, your healthcare team's details and any future appointment times.

Our free smartphone app contains a seizure diary to help you monitor your triggers. It is available for both iPhone and Android phones. Alternatively download a PDF seizure diary or get a printed seizure diary from our online shop.

Your overall wellbeing

Improving your overall wellbeing may also help to reduce the number of seizures you have. This could include having a balanced diet, keeping physically active, sleeping well and finding ways to relax and manage any stress. Some people find complementary therapies or psychological therapies help with their overall wellbeing. For some, just talking to someone who understands can help too.

Want to find out more?

Find out more about seizure triggers and how to manage them.

Find out more about looking after yourself.

Find out about monitoring epilepsy and therapeutic drug monitoring.

If you would like to talk to someone

You can also talk to someone by calling our confidential helpline.

Taken from our free Just diagnosed pack which includes 'just diagnosed' booklet, seizure diary, first aid card, helpline card, 'what would help me?' postcard and ID card.