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Julie Sims hugging Peter Hook

Peter Hook dedicates song to mum who lost son to SUDEP

13 August 2019

Peter Hook dedicated the last song of his set "Love Will Tear Us Apart" to Julie Sims at PennFest, who admits it was a very emotional moment.

An assortment of drugs

Milpharm Topiramate 25mg is out of stock in UK

13 August 2019

We have been informed that Milpharm's version of topiramate 25mg tablets are out of stock in the UK.

Drugs spilling out of a container

Diazepam RecTubes 5mg and 10mg are out of stock in UK

9 August 2019

Diazepam RecTubes (rectal diazepam) 5mg and 10mg doses are out of stock in the UK.

Image shows a blue tablet shaped circle with a loud haler inside it, sounding the alarm

Shortage of Epanutin® (phenytoin) 30mg/5ml oral suspension

9 August 2019

We are aware that some of you are struggling to gain access to Epanutin (phenytoin) 30mg/5ml oral suspension. Pfizer has assured us that the Canadian presentation,...

Drugs in a pharmacy

Some versions of Mylan's oxcarbazepine are out of stock in the UK

7 August 2019

We have been informed that Mylan is out of stock of its versions of oxcarbazepine 300mg and 600mg tablets.

Drugs stacked on top of one another

Gabitril tablets are currently out of stock

6 August 2019

We have been informed by Teva UK that all strengths of Gabitril (tiagabine) tablets are currently out of stock in the UK.  

An assortment of drugs stacked on top of each other

Temporary delay in delivery of Epilim and Frisium

2 August 2019

We have been informed by Sanofi that there has been a temporary delay to the delivery of some medicines including Epilim and Frisium.

Cameron Boyce wearing a black beret and a blue shirt

Why Disney star Cameron Boyce’s death from SUDEP underlines urgency of our research

31 July 2019

It has been confirmed that Cameron Boyce sadly died from SUDEP. Read why SUDEP is a key focus of our research.

Medicinal cannabis

Clinically trialled medicinal cannabis product could be given final approval in two months

30 July 2019

Epidyolex, an oral solution of cannabidiol, has been recommended for approval for use as an add-on therapy for seizures.

Actor Idris Elba is wearing a white top and looking up. He looks warm and friendly

Actor Idris Elba comes to aid of woman having a seizure

29 July 2019

Epilepsy Society has hailed actor Idris Elba a superhero after he stopped his new play, Tree - mid-performance - to help a woman in the audience who was having a...

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