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13 November 2015

Could you help with our genetic research by sharing your story?

Epilepsy Society is about to launch an exciting new genetic research project which has the potential to improve the lives of those with epilepsy. But we need your help.

We need to demonstrate to the government and through the media, the huge impact that seizures can have on a person's life, affecting education, employment, relationships, family life and the ability to drive.

The new project will build on our ongoing genetic research. We need to put forward compelling stories that illustrate just how vital this research is and the difference it could make to many of the 600,000 people in this country who live with epilepsy.

We want to hear from you about the difference that research could make to your life.

Uncontrolled seizures

We would specifically like to hear from people who continue to have seizures in spite of their medication or other forms of treatment such as vagus nerve stimulation, surgery and the ketogenic diet.

If you would be happy to share your story through television, radio, print media and social media, please:

We are looking forward to hearing from you.

Find out more

Read some of the personal stories that supporters have generously shared with us in order to raise awareness and understanding of epilepsy.