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24 October 2019

Valproate and pregnancy awareness survey 2019

Are you a woman or girl under the age of 55 who is taking, or has taken, sodium valproate since 1 August 2018?

We want to find out how much women and girls of childbearing age know about the risks associated with the epilepsy medication, if taken during pregnancy. Please help us by taking part in our survey below.

For every baby exposed to sodium valproate during pregnancy, there is up to a 40 per cent risk of the baby being born with a physical or neurodevelopmental disability.

Valproate and pregnancy awareness survey 2019

We would be grateful if you could fill in our survey at the link below to help us assess:

  • how effective new regulations around prescribing the drug are;
  • whether women and girls are aware of the risks;
  • and how they feel about the pregnancy prevention programme.

Valproate and pregnancy survey 

New regulations

New regulations around prescribing sodium valproate (also known as Epilim, Episenta, Epival, Convulex, Depakote, Kentilim, Orlept, Syonell, Valpal and Valproic acid) were introduced by the Medicines and Healthcare products Agency in April 2018.

The survey has been launched by the three charities Epilepsy Society, Epilepsy Action and Young Epilepsy. The survey will run for four weeks until Tuesday 19 November 2019.

You should never stop taking sodium valproate without consulting your doctor.

More information

To read the guidelines around sodium valproate, please go to:

Valproate and pregnancy guidelines

Valproate use by women and girls