ANNUAL REPORT AND ACCOUNTS 2016-2017
Thank you for helping us to be pioneers in epilepsy care and support.
Chief executive's letter
"Arriving at the Epilepsy Society towards the end of the year I was impressed not only with the warmth of the welcome but also by our radical heritage.
We have been pioneers for all our history. Pushing forward the frontiers and not being afraid to challenge the prevailing orthodoxy.
In 1898 our founding fathers did not accept that prisons, workhouses or other institutions should be the only options for people with epilepsy. And nor do we. We believe that care and support reflecting individual people's preferences is the only right way to provide care and support. And we are conscious that we need to make improvements before we reach a standard that we are proud of for everyone who receives our care and support.
Because being a pioneer is not comfortable. It involves looking at the world in a critical way and - while always celebrating all that has been achieved - being clear eyed about what needs to change. The standard of care and support provided to people with epilepsy can be improved, and should be improved, including by us. We will look to learn and improve further in the coming year and to champion the many examples of excellent healthcare and wonderful care in people's homes across the country, as well as pressing for improvements where they are needed."
Fundraising, marketing and press
20,000 followers on Twitter
51,000 page fans on Facebook
450,000 video views in 2016/17
Epilepsy Society in the news
People with epilepsy say they are often wrongly accused of being drunk when they are at their most vulnerable, either during a seizure or as they recover. Our campaign in February 2016 set out to address this misunderstanding and rase awareness of the issue.
The story was picked up by the Huffington Post (10.7 million monthly visitors) and The Mirror online (five million daily online users).
Income and spend
We’ve started to sequence and provide clinical interpretation of 5,000 genomes over the next three years in order to understand the causes of epilepsy at an individual level.
To continue to grow our range of medical services at the Chalfont Centre and develop links with partners like University College London Hospitals at local and national level to reach more people with epilepsy.
To focus on resilience both in terms of financial sustainability, great quality of care and innovative new ways of epilepsy care.
Read our annual accounts 2016/17
Old annual reports and accounts
Epilepsy Society is the working name of The National Society for Epilepsy, registered with the Charity Commission, registration number 206186. The Charities Act 2011 requires all registered charities to prepare a Trustees' Annual Report (TAR) and accounts, which we publish here.