planning and following journeys
This activity is about planning (working out) and following a journey, including using public transport, and whether severe anxiety or distress stops you from being able to go out. It is not about your physical mobility (covered in the mobility activity 'PIP - moving around').
A - Can plan and follow the route of a journey unaided 0
B - Needs prompting to be able to undertake any journey to avoid overwhelming psychological distress to the claimant 4
C - For reasons other than psychological distress, cannot plan the route of a journey 8
D - For reasons other than psychological distress, cannot follow the route of an unfamiliar journey without another person, assistance dog, or orientation aid 10
E - Cannot undertake any journey because it would cause overwhelming psychological distress to the claimant 10
F - For reasons other than psychological distress, cannot follow the route of a familiar journey without another person, assistance dog or orientation aid 12
- 'Journey' means a local journey, whether familiar or unfamiliar. 'Follow' means having the mental ability to reliably follow a route, it does not mean the physical act of moving.
- This activity may not apply to you at all, or not all of the time. However, it might apply to you if your epilepsy or seizures affect your ability to think clearly or affects your senses, so that the activity is difficult or dangerous. It might only affect your ability to do this activity at certain times, such as during and after a seizure. It might also affect you if, for example, your medication affects your thinking, concentration, memory or taking in information. It might also apply if you need supervision to be able to plan or follow a journey.
- Your safety is important. For example, this activity might apply to you if you always need someone with you when going out to keep you safe if you have a seizure, or if you are confused after a seizure and need help to complete your journey.
- ‘Psychological distress’ could mean severe anxiety about making a journey or going out alone. For example, the possibility of having a seizure and the risks associated with this, including accident and injury, might cause anxiety for some people which stops them going out.
Things to think about
What could happen to you if you have a seizure when planning or following a journey? For example, for people with complex focal seizures this might include wandering into the road; for people with tonic, atonic or tonic clonic seizures this might include falling into the road. What is the likelihood of this happening? Include any real examples of when this has happened, and how it affected you physically and mentally. This is important if the risks of having a seizure cause you anxiety, or mean that you do not go out of your house alone. If this applies to you, state clearly what could happen to you if you have a seizure. For example, rather than ‘I don’t go out alone’ you might say ‘I only go out if someone comes with me because…’
Does anything else about your epilepsy (including your seizures, recovery from seizures, medication side effects, or impact of your condition) affect your ability to do any of this activity? You can include any impact on:
- your concentration, motivation, thinking or memory (for example if your awareness of danger is affected);
- your mood (for example, anxiety or depression, or fear about having a seizure during this activity); or
- any tiredness or confusion that you may have following a seizure.
Remember to include:
- whether you can do this activity reliably (safely, to an appropriate standard, repeatedly and in a timely manner);
- whether you need aids, appliances or help from another person to do this activity;
- how often your condition affects your ability to do this activity (the 50% rule); and
- the impact of any other conditions or disabilities that you have on this activity.
You will only get a single score for each category, so make sure that you include as much relevant information as possible. You can continue on a separate sheet of paper if you need to.