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recommended information

Here we have compiled a list of top resources, particularly relevant to healthcare professionals, which you may find useful when delivering care or treatment to adults with epilepsy.  The guide includes online resources on epilepsy, medication, driving and treatment as well as print resources which you can order online. 

Online resources

The following resources are all available to read on our website.

NICE guidelines on epilepsy

Access the National Institute for Health and Care Excellence CG137 
The epilepsies: the diagnosis and management of the epilepsies in adults and children in primary and secondary care.

Epilepsy information in other languages

Our epilepsy app and two new videos - All about epilepsy - are now available in several languages including Spanish, Polish, Turkish, Hindi, Urdu, Cantonese and Somali.

Epilepsy medication updates

Read the latest news and updates about anti-epileptic medication, including new drugs, name changes, problems with supply of medication and any changes to guidance on taking epilepsy drugs.

Updated MHRA advice on prescribing AEDs

Read the latest guidance on switching between branded and generic anti-epiletic drugs.

Yellow Card Scheme from the MHRA

Find out more about reporting side effects (including breakthrough seizures). Also a training website for how to complete reports.

Driving regulations for epilepsy

We provide a clear outline of the latest driving regulations for epilepsy.

What help is available?

This guide to what help is available to people with epilepsy covers financial help and benefits as well as information about support from social services.

Treatment

Our comprehensive treatment section covers the ketogenic diet, vagus nerve stimulation, epilepsy surgery and deep brain stimulation.  It also includes an in-depth section on medication/anti-epileptic drugs. You can download our two medication charts to help people keep track of which medications they are taking and when, and to record any changes in dosage as they change or withdraw epilepsy drugs.

Print resources

The following resources can be ordered through our online shop.

Just diagnosed

‘Just diagnosed’ is Epilepsy Society’s information pack for people newly diagnosed with epilepsy.

This pack helps healthcare professionals to meet the 2012 NICE clinical guideline for the treatment and management of epilepsy which identifies that everyone providing care or treatment for adults with epilepsy should be able to provide essential information, about all aspects of epilepsy, and healthcare professionals should inform individuals of different sources of information from voluntary organisations.

You can order ‘just diagnosed’ from our online shop as single packs free of charge or in boxes of 50 packs for the cost of postage. An online version of ‘just diagnosed’ is also available.

Epilepsy in mind: anxiety and depression

information for healthcare professionals (pdf, 989 KB) which outlines existing guidelines, and suggests practical approaches for addressing mood difficulties and epilepsy within existing clinic time. This may be particularly useful for GPs, neurologists, epilepsy specialist nurses, mental health teams, learning disability teams, psychiatrists, psychologists and therapists. 

Free mood resources for people with epilepsy

Your appointment (pdf, 826 KB) is a short questionnaire for people with epilepsy, to encourage them to talk in clinic about any mood problems if appropriate.
Our keystones postcard has coping strategies for anxiety and depression. Order free copies of keystones from our online shop.

The Bigger Picture is our booklet about epilepsy and mood for people with epilepsy. The booklet uses comics to show how people may feel and deal with their epilepsy. It also has information about common mood problems and epilepsy, and what may help. Commended in the BMA Patient Information Awards 2010.

Order free copies of The Bigger Picture from our online shop.

Epilepsy - how I feel is our easy read booklet about mood with large text, pictures and stickers. This booklet is written for adults with a learning disability, and is not designed for children.  However, some people who do not have a learning disability may find the easy read style helpful. Highly commended in the BMA Patient Information Awards 2011.

Order free copies of Epilepsy - how I feel from our online shop.

manyLives - managing the epilepsies

manyLives – managing the epilepsies is an educational resource for professionals involved in the treatment and management of the epilepsies with subtitles in Gujarati, Bengali, Punjabi, Urdu, German,  French, Spanish, Italian  and English.

manyLives combines interviews with nine professionals working within the field of epilepsy, with footage of epileptic seizures, useful practical tools that can be printed from a PC or Mac, and footage of the entire interview with each of the professionals presented in a tutorial style.

This programme was produced in 2006.

Buy manyLives from our online shop.

Anti-epileptic drugs booklet

This postcard size booklet, updated in June 2014, contains photographs of currently licensed brand and branded generic anti-epileptic drugs (AEDs), used to treat epilepsy in children, young people and adults in the UK. It is also available as an eBook.

Order anti-epileptic drugs booklet from our online shop.

Download (opens new window) the eBook from the Google Play store.