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rob's story

Techie minded Rob O’ Keefe hopes that one day epilepsy research will find a cure for the seizures that have been a part of his life since the age of five. In the meantime, he uses the phone app he developed with us to monitor his seizures and medication.

Rob was diagnosed with epilepsy at the age of five. During the 32 years since then, he’s experienced many changes in seizure pattern and severity.

Rob O'KeefeHe explains: “My seizures have never been fully controlled. For the last 20 years, I have only experienced nocturnal seizures. Once they had settled into this pattern, I was able to apply for my driving licence and I am now the proud owner of a Yamaha R6 motorbike!”

Rob has worked for technology company Citrix since 1999. As IT engineering manager, he regularly travels abroad, which means making sure he is organised with his medication.

Rob said: “I have a travel check list: passport, credit card and tablets!”

But the most important item on Rob’s list is his mobile phone – and the phone app that reminds him to take his medication and can record any seizures or any important information relating to his epilepsy.

Rob developed the app together with colleague Shawn Fraser as part of the Citrix global impact day – an employee volunteering scheme. 

And this essential mobile epilepsy toolkit is available free of charge to everyone from the Android market place and Apple store.

The app includes essential first aid information, an interactive seizure diary, medication reminder and links to Epilepsy Society’s website and social media channels. In addition, the iPhone version of Epilepsy Society’s app has just been updated to include medication notes and reminders.