social care reform and funding
We campaigned to ensure that all people with epilepsy who have care needs get the right level of support.
Why was this a priority?
Some people with epilepsy require additional care or support in order to live a full life. For some people this might mean having access to information about epilepsy when they need it, for others this might mean specialist residential care. The Care and Support Bill (the Bill), which aims to transform the social care system for everyone with care and support needs, became law in 2014.
Overall, the Bill simplifies and modernises the current social care laws. It includes proposal for a care system that focussing on people's choices and goals, increases support to carers and changes the way in which social care is funded.
What are we doing?
Ordinary residence is the means by which local authorities determine which authority has responsibility for funding care services. We have been part of the Voluntary Organisations Disability Group for many years to campaign to change the laws in relation to where an individual is considered ‘ordinarily resident’.
As part of the Voluntary Organisations Disability Group, we have written a report for the Department of Health about the impact of current ordinary residence rules (pdf) on organisations (such as Epilepsy Society) that provide care services. We have also met regularly with the Department for Health to discuss the main issues with ordinary residence law and will continue to provide input as the detailed proposals are developed.
You can read more about our ordinary residence work in our blog article 'Stop ordinary residence disputes becoming "business as usual' (opens new window) on the VODG website.
Lobbying government to adequately fund social care
We are a member of the Care and Support Alliance (opens new window). This is a coalition of 70 organisations campaigning to keep social care reform and funding on the political agenda.
We recently contributed to a booklet of case studies (pdf) about the difference that good care can make to an individual and their family. You can read on page 19 about Davina, who is supported by Epilepsy Society's residential care services. This report was sent to The Chancellor, George Osborne, to urge him to invest in social care.