helpline 01494 601 400


Peter Hook dedicates song to mum who lost son to SUDEP

Julie Sims hugging Peter Hook

Peter Hook dedicated the last song of his set "Love Will Tear Us Apart" to Julie Sims at PennFest, who admits it was a very emotional moment.

Why Disney star Cameron Boyce’s death from SUDEP underlines urgency of our research

Cameron Boyce wearing a black beret and a blue shirt

It has been confirmed that Cameron Boyce sadly died from SUDEP. Read why SUDEP is a key focus of our research.

Amelia's story

Amelia Roberts was beautiful, vivacious and just 21 when she tragically died from a fatal seizure just before Christmas in 2018.

Professor Ley Sander talks about the risk of seizures following Cameron Boyce's tragic death

Professor Ley Sander talks about the risks of seizures following the death of Disney star Cameron Boyce.

Joy Division fan Julie wins tickets to Penn Fest

Julie Sims smiling and hugging her son Joey

Julie Sims, who has always been a fan of Joy Division, wins VIP tickets to Penn Fest.

Epilepsy Society, UCL and Congenica join forces in genomic study to identify causes of SUDEP

Epilepsy Society, UCL and Congenica join forces

Congenica announced a key partnership with the UK’s Epilepsy Society to study the genomics of sudden unexpected death in epilepsy (SUDEP).

Father's Day without James

Our Vice President John Hirst discusses losing his son to SUDEP (Sudden Unexpected Death in Epilepsy) in 2002 and the effect it's had on his Father's Day.


Professor Martin Elliott stresses the importance of research into SUDEP

Professor Martin Elliott

Professor Martin Elliott, Professor of Paediatric Cardiothoracic Surgery at UCL & Medical Director at Great Ormond Street Hospital for Children stressed the importance of further research into Sudden Death in Epilepsy (SUDEP) during his lecture, 'Sudden death in the young: A terrible waste' at the Museum of London on 18th January 2017.

Professor Ley Sander wins top neurology award in India

Professor Ley Sander receiving an award for neurology in India.

Congratulations to our medical director, Ley Sander, who has just been presented with the Professor Baldev Singh Oration Award in recognition of his outstanding work in neurology. 

peter's story

In this blog Peter Palmer's family discuss how they decided to remember his life and help fund our epilepsy research at the same time.


Subscribe to RSS - sudep