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Your feelings

Let's be honest, you probably don't want to have epilepsy. Whether you've had epilepsy for a long time or if it's something that's new, you might have questions or concerns about it.

If you do feel down or worried about your epilepsy, you're not alone. Many young people with epilepsy may have the same worries that you have. Some people find that talking about their concerns can help. There are lots of ways that you can connect with other people and get support.

It doesn't matter who you decide to talk to, as long as you feel you can trust them and that they are good at listening. It could be a friend, a family member or your GP. Some people find it helpful to talk to a counsellor. Or you might like to call a helpline.

Whoever you talk to, it's OK to be unsure of what you want to say. Sometimes just having the time and space to say what you want can help to let off some steam or get your thoughts in order.

Getting support

  • Epilepsy Society Helpline - if you want to know more about epilepsy, or talk to someone about your epilepsy, our confidential helpline offers information and emotional support.
  • Epilepsy Society app - download our free app for smartphones for facts about seizures, information about medication and first aid, a guide to the recovery position and an interactive seizure diary. 

Find out how other young people deal with their epilepsy

Taken from our Your epilepsy - now and next leaflet. Order this leaflet from our online shop as part of our 'first five free' offer.

This information was reviewed by Professor Matthias Koepp, Professor of Neurology, University College London and Epilepsy Society. Epilepsy Society is also grateful to the young people who helped develop this information.