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Your feelings

Let's be honest, you probably don't want to have epilepsy. Whether you've had epilepsy for a long time or if it's something that's new, you might have questions or concerns about it.

If you do feel down or worried about your epilepsy, you're not alone. Many young people with epilepsy may have the same worries that you have. Some people find that talking about their concerns can help. There are lots of ways that you can connect with other people and get support.

It doesn't matter who you decide to talk to, as long as you feel you can trust them and that they are good at listening. It could be a friend, a family member or your GP. Some people find it helpful to talk to a counsellor. Or you might like to call a helpline.

Whoever you talk to, it's OK to be unsure of what you want to say. Sometimes just having the time and space to say what you want can help to let off some steam or get your thoughts in order.

Getting support

  • Epilepsy Society Helpline - if you want to know more about epilepsy, or talk to someone about your epilepsy, our confidential helpline offers information and emotional support.

Find out how other young people deal with their epilepsy

  • Visit  for videos, audio and text clips of young people taking about their experiences of epilepsy.

Taken from our Your epilepsy - now and next booklet. Order this booklet from our online shop as part of our 'first five free' offer, or download the pdf using the link below.