New research finds half of people living with Dravet Syndrome experience feeding problems
A study that was jointly funded by the Epilepsy Society has found that over half (52 per cent) of children and adults with Dravet Syndrome have experienced some form of feeding problem, with some reporting multiple issues.
Charities call on Health Secretary to carry out urgent review of medicines supply chain
The Epilepsy Society is calling on Health Secretary Victoria Atkins to carry out an urgent review of the medicines supply chain as our own survey, carried out with other health charities, shows the struggles that people are experiencing in accessing life-saving medication.
O2 confirms its advert has passed photosensitive epilepsy safety tests
We reached out to mobile network O2 this week after a number of people with epilepsy contacted us with concerns about strobe lighting in its recent advert.
Charities and pharmacists call for medicine supply chain review as shortages continue
The Epilepsy Society has joined forces with other health charities and pharmacists to tell the government to fix the medicines supply chain as new data shows drug shortages are putting patients’ health at risk.
Meds shortages: have your say
The Epilepsy Society has launched our official Medication Shortage Survey, alongside Epilepsy Action, SUDEP Action and Parkinson's UK. Have your say now!
Zach's Law: celebrating a great campaign
We had a truly remarkable celebration of our Zach’s Law campaign last week, with Zach meeting the Prime Minister, Rishi Sunak, and Leader of the Opposition, Sir Keir Starmer, and having photographs taken at 10 Downing Street.