We are the Epilepsy Society. The UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care.
What we do
Cutting edge research
Epilepsy Society is unique in bringing together experts from around the world to form a powerhouse multidisciplinary team who contribute to a wide ranging spectrum of research.
Advocacy
We are a voice for people with epilepsy, striving to push epilepsy up the political agenda and bring about change at government level.
Leading care provider
Our range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes.
Epilepsy support
Our confidential epilepsy helpline and online information provide support to people who are affected by epilepsy.
Our research
Genomics
Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme.
Research
The ultimate goals of our current research are to spearhead personalised treatment and to incorporate genomic diagnosis into the NHS for people with epilepsy.
Latest news
Epilepsy and the Electric Spirit
subtitle: Epilepsy Society featured in BBC Radio 4 documentary
Presenter Daniel Kramer opens his documentary, Epilepsy and the Electric Spirit describing having a seizure. He’s at a bus stop on his way to a party and he’s carrying a large cheese plant. As the bus draws up, he notices the left side of his vision has gone completely hazy and scrambled. Daniel knows he is going to have a seizure. In this personal and revealing documentary the reality of epilepsy is laid bare and shows the human beings behind the condition that is still so misunderstood.
Our letter to the Health Secretary: Act now to save lives next summer
Along with over 60 co-signatories, Epilepsy Society is writing to the Secretary of State for Health and Social Care calling for urgent action to tackle extreme heat in care homes.
“Time is ticking”: MPs and charities demand action on deadly care home heat
Charities, care providers, and MPs have issued a stark warning to the government to implement a Cool Homes Plan for social care, or risk avoidable loss of life next summer.
Get an alert when your prescription is ready via the NHS app
While many people have been receiving texts from their pharmacy when their prescription is ready to be collected, millions more can now get an alert on their smartwatch or mobile if they use the NHS app. Nearly 2,500 chemists across England, including every ASDA and Boots pharmacy stores are participating.
SUDEP Action Day:Be empowered to ask difficult questions
Today, Wednesday 21 October, is SUDEP Action Day and the theme for this year is sparking open conversations around seizure safety and risk management.
Epilepsy Society at the political party conferences 2026
The Epilepsy Society has wrapped up a whirlwind month attending five of the major political party conferences, amplifying the voices of people with epilepsy.
Hundreds of delegates, including government ministers, MPs, councillors, and charity representatives, visited our stands to learn more about epilepsy and the daily impact it has on people’s lives.
Personal stories
Becca's story
Sweet Success! How Becca and the amazing team at Gemini Chocolate raised an incredible £1,000 for the Epilepsy Society.
Eamonn's story
Eamonn is a restaurant and bar manager and he was diagnosed with epilepsy aged 18.
Sunil's story
Flipping the triangle around so epilepsy and medication aren't in charge of me.