helpline 01494 601 400
enquiries 01494 601 300

"Calling the helpline really put my mind at rest"

'I've needed the support of the helpline many times over the years. They are a friendly, listening ear and give me information I need to help my children understand my condition better.  Crying always feels worse when you are alone but if you phone the helpline, you can have a good cry and they can point you in the right direction. I felt like a weight had been lifted off my shoulders.' Sarah, Bristol.

Just £17 could fund a helpline call

Our helpline answers thousands of calls every year, supporting people in moments of extreme stress, when they need a listening ear and want accurate information. The helpline costs us £163,000 a year to run and relies on donations from supporters such as yourself. Please consider making a donation today, so that we can continue to be there for people like Sarah.

Our specialist helpline is here to help anyone affected by epilepsy.

"I felt I wasn't alone"

Watch our video of Sarah Reid, mum of two, speaking about balancing the stresses of her epilepsy and being a mum. 

"All I want is my independence"

Sarah has left temporal lobe epilepsy and has multiple seizures on a regular basis. 'I have two daughters - Layla who is 11 and Lauren who is two.  All I want is my independence,' she says. 'I want to cook by myself, bath by myself and look after my two daughters without having to ask for help.' 

A day in the life of a helpline worker

We followed around one of our helpline workers for a day to find out the challenges and rewards of working on a specialist support helpline.

Layla's book

Sarah's daughter Layla, 11, wrote the book 'Epilepsy book for Kids' aged just seven with hand drawn illustrations of how epilepsy affects her mum. Since its publication, Layla hopes the book can be used in schools to enable teachers and children to understand epilepsy better. Layla's book is available to order from our online shop.

We're here to help

Epilepsy Society's specialist helpline is here to help anyone affected by epilepsy in the UK. We welcome calls from people with epilepsy, their families and friends, as well as professionals such as doctors, nurses, care workers, teachers and employers. We give each caller as much time as they want to talk about matters that are important to them.

Call: 01494 601 400 (national call rate)
Daytime: Monday, Tuesday, Thursday, Friday 9am - 4pm
Extended hours: Wednesday: 9am - 8pm