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care and treatment: your rights and choices

Our document, Care and treatment: your rights and choices explains your rights and the services that you can expect as someone with epilepsy.

In some cases, it lists your ‘rights’ – things that you are entitled to by law. In this case we say ‘you have a right to…’
In other cases, you may not have a legal right, but these are recommendations. In this case we say ‘you should…’

Get a copy of Care and treatment: your rights and choices

Download Care and treatment: your rights and choices.

Alternatively, our quick guide Care and treatment:your rights and choices summarises the key points.

 

After a suspected seizure, you should be seen by an epilepsy specialist within two weeks.

If your seizures are not controlled, or your diagnosis is not clear, you should be referred to tertiary care.

You have a right to appropriate treatment options, and should have a consistent supply of medication.

You are entitled to NHS dental care and free prescriptions.

You have a right to be involved in your healthcare and you should have enough information, and appropriate support, so that you can make informed decisions about your health and be an active participant in all decisions about your epilepsy treatment and management.

You should have a comprehensive care plan agreed with your healthcare professionals, which should include both medical and lifestyle issues. You should also have an annual review of your epilepsy.

You have a right to choose who provides your care.

You have a right to access your own health records.

You are entitled to ask for a health and social care assessment. Anyone caring for you is also entitled to an assessment of their needs. You may also be entitled to benefits.

You have a right to be treated with dignity and respect and to not be discriminated against.

You have a right to complain about services or treatment.

You have responsibilities as well as rights.

Terms used

Primary care – this means health services such as the GP or pharmacy. This is ‘primary care’ because it is usually the first place you will go to for help with anything medical.

Secondary care/ secondary services – this covers health services such as local hospitals and clinics, where you would see someone more specialised than the GP or pharmacist, such as a neurologist. This is ‘secondary care’ because you usually have to be referred by your GP. It also includes A&E departments.

Tertiary care/ tertiary services – this refers to specialist hospitals or units that focus on specific care for different conditions. For example, if someone is being considered for epilepsy surgery, they might be seen in tertiary care. You have to be referred to tertiary care from either primary or secondary care.

Where we refer to the NHS Constitution or the Information Strategy, this is not specific to your epilepsy, but applies to everyone.
Where we refer to the NICE clinical guideline on epilepsy, this is specific to your epilepsy and its management.

Notes

This document includes information from the NHS Constitution, the NICE* clinical guideline on epilepsy the Equality Act 2010 and the Information strategy ‘The power of information'.

* NICE is the National Institute for Health and Clinical Excellence.

Find out more about the documents and organisations that have provided much of the basis for this document.