helpline 01494 601 400

epilepsy helpline

Epilepsy Society's confidential helpline is available for anyone affected by epilepsy. We welcome calls from people with epilepsy, their families and friends, as well as professionals such as doctors, nurses, care workers, teachers and employers.

Call 01494 601 400

Opening hours:

Monday and Tuesday 9am-4pm, Wednesday 9am-7:30pm.

Confidential (national call rate) 

email: helpline@epilepsysociety.org.uk 

Christmas opening hours 2018:

Our helpline is open until 1pm on 24th and 31st December.

It is closed Christmas Day (25th), Boxing Day (26th) and New Years Day (1st January 2019).

If you need support out of these times we encourage you to contact Samaritans on 116 123 or email jo@samaritans.org.

"I felt I wasn't alone"

Watch our video of Sarah Reid, mum of two, speaking about balancing the stresses of her epilepsy and being a mum.

About the epilepsy helpline

We offer time to talk in confidence about epilepsy. We can give up-to-date information, and listen to how epilepsy affects you. Sometimes we may ask you questions to help you think things through and talk about what your options may be. We offer a telephone interpreting service via Language Line and support for callers who have a speech or hearing impairment.

All calls to the helpline are confidential. This means that the helpline will not share anything about you or what you talk about with anyone else. We may take notes during your call to help us to understand your situation, or to send you any information that you have asked for. All our notes are destroyed after your call.

We do not give advice and we are not medically or legally trained.

See our privacy policy for more about the helpline service.

"They are a friendly, listening ear"

 "I've needed the support of the helpline many times over the years. They are a friendly, listening ear and give me information I need to help my children understand my condition better." Sarah. 

A day in the life of a helpline worker

We followed one of our helpline operators for a day to find out the challenges and rewards of working on our helpline.

Your comments on the helpline

Our helpline is one of our most important support services. We continually collect feedback to help ensure it meets the needs of people affected by epilepsy.

If you would like to give us your comments on a call that you have had with us, please complete our online survey or call the helpline to request a form to be sent to you in the post.

Language line

You can speak to our helpline, through an interpreter, in over 170 different languages with Language Line Solutions.

To use Language Line, call our helpline number (01494 601 400) and tell the helpline operator which language you need. 

  • The helpline operator will take your telephone number and ask for your first name. 

  • They will contact Language Line and an interpreter will call you within a few minutes and introduce the helpline operator.

  • You will be able to talk to the helpline operater through the interpreter.

All language line interpreters have signed confidentiality agreements.

As we are a UK based charity, we are only able to offer this service to people living in the UK.

Quality standard

The helpline is a member of Helplines Partnership.