Sophie Harries, 22, is a dietitian from Somerset. She was diagnosed with photosensitive epilepsy at the age of 15. She explains how it affects her life.
"When I was first diagnosed with photosensitive epilepsy, social media wasn't as big as it is now, so it wasn't such a problem for me. Once I went to uni I had to be careful to avoid strobe lighting so couldn't go out clubbing with my friends.
"That is still the case, but now I have to be careful of any videos uploaded to social media that contain strobe lighting or flashing imagery. The videos tend to play automatically putting me at risk of a seizure. If my friends have been out clubbing I have to avoid social media for a while.
"But so much of the shared content can cause a problem. There was a recent trailer for a film which contained flashing lights. I reported it to Instagram but they just said it wasn't breaching their current terms of usage.
"You can un-follow posts but they still tend to follow you around. For a 15 year old today it is an absolute minefield. Young people are permanently on social media with friendship groups. It is their way of finding out who they are. If I was 15 years old today and just diagnosed with photosensitive epilepsy, I would have to avoid social media altogether or risk lots of seizures."
The views expressed here are those of the author and not necessarily those of Epilepsy Society.