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the development of the epilepsy charter

Sources used to develop the Epilepsy charter.

The main rights and recommendations in the Epilepsy charter are based on information from the following documents and organisations:

  • The information strategy: ‘The power of information’
  • the NHS Constitution
  • the Equality Act 2010
  • NICE – the National Institute for Health and Clinical Excellence.

The information strategy: ‘The power of information’

The information strategy (opens new window) is the Department of Health’s framework for gathering, storing and sharing information for, from and about people using health and social care services. The strategy aims to ensure that information is used to improve your experiences of health and social care and the quality of services. For example, accessing your GP records and booking appointments online, and having more information, so that you can choose the treatment and services that are right for you.

The NHS Constitution

The NHS Constitution (opens new window) aims to set out clearly what patients, the public and staff can expect from the NHS and what the NHS expects from them in return.

The constitution includes:

  • rights (what you can legally expect),
  • pledges (what the NHS is committed to achieving) and
  • responsibilities (to and from patients, the public and staff).

The constitution aims to ensure better treatment within, by and of the NHS. The constitution applies to everyone who is entitled to NHS services in England.

Find out about NHS services for the rest of the UK: NHS Scotland, NHS Wales, and Health and Social Care Services in Northern Ireland (all open in new window).

The Equality Act 2010

The Equality Act 2010 combines nine anti-discrimination laws (including the Disability Discrimination Act) into a single law. It protects people from unfair discrimination, and promotes equal opportunities. It also protects people such as carers, who are associated with another person, from discrimination.

See more about the Equality Act (2010) from the Citizens Advice Bureau (opens new window).

NICE – the National Institute for Health and Care Excellence

NICE – the National Institute for Health and Care Excellence, is the organisation that publishes national guidance and standards on the promotion of good health and the prevention and treatment of ill health. It produces guidelines on different health conditions, including the clinical guideline ‘The epilepsies: the diagnosis and management of the epilepsies in adults and children in primary and secondary care’ (opens new window). This guideline was updated in January 2012.

Although the NICE clinical guidelines are ‘guidance’ (and not ‘the law’), this advice about best practice is produced by experts in the topic, and all its information and recommendations are thoroughly researched and based on the best available evidence.

NICE also publishes ‘technology appraisal’ guidance (TAs). This type of guidance evaluates the clinical and cost effectiveness of different medicines, tests or devices, so that patients receive the best treatments and the NHS makes the best use of its resources. Single TAs look at one ‘technology’ and multiple TAs compare several. Technology appraisals are often done for new treatments, so that these can be recommended within the NHS. NICE uses evidence for the appraisal, which is reviewed and evaluated by an independent review group to look at the benefits and the costs of that ‘technology’.